Drugs for rare diseases bilateral agreements

On March 22, 2023, we announced up to $1.5 billion over the next 3 years in support of the first-ever National Strategy for Drugs for Rare Diseases. This funding will help increase access to and affordability of effective drugs for rare diseases and contribute to improving the health of patients across Canada.

As part of this overall investment, we made up to $1.4 billion available to provinces and territories through bilateral agreements.

As part of these bilateral agreements, provinces and territories commit to:

There are unique challenges associated with decision making about rare disease drugs. The common list of new drugs was developed with provinces and territories to ensure that the national strategy delivers the most possible benefits to all patients with rare diseases.

The common list is designed to help develop, collect, evaluate and use real-world data and evidence to make decisions about the listing and reimbursement of rare disease drugs within Canada's existing pharmaceutical management system. This could help with decisions related to future drugs for rare diseases.

We will publish the names of drugs on the common list as the pan-Canadian Pharmaceutical Alliance concludes its price negotiations.

Common list of drugs

Drugs for Rare Diseases funding agreements and news releases

British Columbia

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