Privacy and the Public Health Agency of Canada

The Privacy Act provides Canadian citizens, permanent residents or individuals present in Canada with the right to access personal information held about them by the government. It also protects against unauthorized disclosure of that personal information. In addition, the Act strictly controls how the federal government will collect, use, store, disclose and dispose of any personal information. 

Privacy Impact Assessment Reports

The Government of Canada is committed to privacy and the protection of personal information used in the course of providing programs and services to the public.

To assure Canadians that privacy principles are being taken into account when there are proposals for the design, implementation and evolution of programs and services that raise privacy issues, the Agency's ATIP Office assists in the development and maintenance of Privacy Impact Assessments and communicates the results of Privacy Impact Assessments to the Privacy Commissioner and the public.

Completed Privacy Impact Assessments

  • Creutzfeldt-Jakob Disease Surveillance System
    The Canadian Creutzfeldt-Jakob Disease Surveillance System (CJDSS) is operated by the Public Health Agency of Canada and conducts prospective national surveillance for all types of human prion disease in Canada.
  • Quarantine Program (December 2016)
    The Quarantine Program works to prevent the spread of communicable diseases into, and out of, Canada.
    The Quarantine Program is a legislated Public Health Agency (PHAC) program that is delivered by the Quarantine Program in collaboration with border health partners, such as the Canadian Border Services Agency, at all Canadian international points of entry.

  • Centre for Biosecurity: Administration of the Human Pathogens and Toxins Act and Regulations Privacy Impact Assessment (March 2017)
    The Centre for Biosecurity collects personal information to uphold the requirements of the Human Pathogens and Toxins Act (HPTA) and Human Pathogens and Toxins Regulations (HPTR) to promote the health, safety and security of all Canadians.

  • National Human Immunodeficiency Virus/Acquired Immunodeficiency Syndrome (HIV/AIDS) Surveillance System (HASS) (April 2016)
    The Public Health Agency of Canada (PHAC) manages the National HIV/AIDS Surveillance System (HASS) and works in collaboration with the provinces and territories (PTs). HASS is a passive case-based surveillance system that collates non-nominal data on HIV and AIDS cases in Canada. Data is voluntarily submitted to PHAC from all PT public health authorities.

  • Canadian Congenital Anomalies Surveillance System (CCASS) PIA (March 2016)
    The Canadian Congenital Anomalies Surveillance System (CCASS) is a population-based surveillance of congenital anomalies which captures secondary health surveillance information on all infants born in Canada and diagnosed as having a congenital anomaly within the first year of life. Under the CCASS, PHAC collaborates with the provinces and territories and other stakeholders to enhance established surveillance systems and to support the development of new systems where there is currently none.

    PHAC manages the CCASS program and works in collaboration with the provinces and territories (PT) to obtain congenital anomalies data through memorandums of agreements and contracts. PTs share their data with PHAC for national reporting on congenital anomalies.

  • The International Health Regulations National Focal Point (NFP) Office Privacy Impact Assessment (November 2016)
    The International Health Regulations National Focal Point (NFP) application, administered by the International Health Regulations National Focal Point (IHR NFP) Office located at the Public Health Agency of Canada (PHAC), must remain accessible at all times for urgent communication with the World Health Organization (WHO), as per the International Health Regulations (IHR)(2005). Canada's IHR NFP Office has mechanisms in place for rapid communication with domestic and international stakeholders in response to global public health risks.

  • All Events Response Operations (July 2015)
    The All Events Response Operations (AERO) application, administered by the Public Health Workforce Development Unit (PHWDU) within the Centre for Public Health Infrastructure (CPHI), is a web-based database that facilitates the collection of information necessary to mobilise health professionals (initially epidemiologists), in support of responses to emergencies/public health events nationally and internationally.

  • Canadian Prenatal Nutrition Program
    This is a PIA for the national evaluation of the Agency's component of the Canada Prenatal Nutrition Program (CPNP). The objectives of this PIA are to determine if there are privacy risks associated with the CPNP, and if yes, to provide recommendations on the reduction or elimination of the risks.

  • Performance Discussion Process and Personal Learning Plans Automated Application Project (January 2011)
    In the January 2004 Speech from the Throne, the Government of Canada called for the creation of a Public Health Agency of Canada (PHAC, hereinafter) to deliver on the Government of Canada's commitment to help protect the health and safety of all Canadians.

  • National Autism Spectrum Disorder Surveillance System (NASS)
    The National Autism Spectrum Disorder Surveillance System (NASS) collects anonymized case-level data to examine and report Autism Spectrum Disorder (ASD) prevalence, characteristics and related outcomes.

Completed Privacy Compliance Evaluations

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