Palliative care can help improve quality of life
Palliative care can help improve quality of life
Palliative care is holistic care offered in any setting for people of any age living with serious illness. It involves a range of care providers and includes the person's unpaid caregivers.
There are many myths about the term "palliative care". Let's clear some things up.
What palliative care can do
Palliative care focuses on quality of life and supports for people living with serious illness, their caregivers and those closest to them. It can:
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Improve your quality of life
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Manage your symptoms
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Help you understand your illness and make decisions
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Help with grief support
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Offer patient and caregiver support
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Manage emotional, psychological, social and spiritual needs
Myths and facts
Palliative care providers
Myth: Only palliative specialists can provide palliative care, once you're at the very end of life.
Fact: Your primary care team can provide a palliative approach to care as soon as you receive a diagnosis of a serious illness. They can offer this care throughout your illness journey. Palliative specialists may also provide more comprehensive care if your illness is complex.
How palliative care can benefit you
Myth: Palliative care means your care providers have given up.
Fact: Palliative care is active care that you can receive with other treatments. It focuses on helping you live life as fully as possible.
A palliative approach to care can support anyone with serious illness, regardless of:
- age
- stage of illness
- which treatments they receive
Find out what others have to say about the benefits of palliative care
When care can begin
Myth: Palliative care is only for the last days or weeks of life.
Fact: A palliative approach to care can begin at any point in your illness journey. Palliative care offered by specialists can also begin much earlier than you may think.
Receiving a diagnosis of a serious illness can be overwhelming. Asking key questions early on can help you understand:
- your illness
- what to expect
- how to prepare for what comes next
What to do when facing a serious illness: 3 sets of questions to ask your health care team
Where you can receive care
Myth: Palliative care is only available in a hospital.
Fact: You can receive palliative care or a palliative approach to care in a variety of settings, such as:
- at home
- shelters
- hospitals
- hospices
- long-term care facilities
"Palliative care" and a "palliative approach to care"
Specialist-level palliative care
This is what some people think of when they hear "palliative care". This kind of care is usually for a minority of people whose symptoms and needs are more complex to manage. If you need these services, your health care provider can refer you to a palliative specialist or team for more comprehensive care.
A palliative approach to care
Sometimes this is called "primary- or generalist-level palliative care". Most people can receive high quality palliative care from professionals who aren't palliative specialists:
- throughout an illness
- from the time of diagnosis
- while undergoing treatments meant to cure
A palliative approach to care includes the core elements of palliative care and is provided by non-specialists, working in a variety of settings.
Many different health and social service providers can introduce and provide a palliative approach to care starting at time of diagnosis. Learn more about available services.
If you're a provider, it might not be easy to talk with your patients about their serious illness. It can be hard to know what to say or when to say it.
3 questions to make conversations about serious illness easier
Palliative care stories
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Andrea and David's story: Finding family supports
A palliative approach to care can offer children with serious illness and their families the support they need to improve their quality of life, together.
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Lillian's story: Making space to grieve
A palliative approach to care can help families and caregivers with their grief as they support their loved ones to live life as fully as possible.
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Glorianne and Sebastien's story: Embracing life
A palliative approach to care can help families and caregivers find opportunities for children with serious illnesses to flourish in their community.
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Guneet's story: More than end of life care
From the time of diagnosis, a palliative approach to care focuses on the person with serious illness as well as those caring for them.
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Mary-Lee's story: Supporting needs along the way
A palliative approach to care is holistic care to support those living with serious illness.
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Mike's story: Helping improve quality of life
A palliative approach to care can support patient needs throughout their illness.
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Alex's story: Living life to the fullest
A palliative approach to care can help patients and caregivers enjoy things that are important to them.
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Biba's story: Grief support for caregivers
From practical help to a listening ear, a palliative approach to care can give caregivers the support they need.
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Ismaël’s story: Care that starts at diagnosis
At every stage of serious illness, a palliative approach to care can provide support to patients and those closest to them.
Grief support
A palliative approach to care can include grief support for:
- people living with serious illness
- family (or chosen family) and friends
- caregivers
You can receive grief support during an illness and after a loss. It can help you adjust to the realities of loss, while re-learning how to find joy and meaning in life. There is no right or wrong way to grieve. It's a normal response to loss, and everyone's experience of grief will be unique.
If you live with a serious illness, you may experience grief related to:
- changing roles for:
- you and your family (or chosen family)
- your social and work relationships
- loss of health, independence and control
If you're a (chosen) family member, friend or caregiver, you may experience grief related to:
- preparing for a future loss
- seeing changes in someone else's health
Find the grief support approach that works best for you.
Resources
National, provincial and territorial resources to help you stay informed.
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