The Cancer in Young People in Canada program
Who are we?
The Cancer in Young People in Canada (CYP-C) program is a national, population-based surveillance system studying all children and youth with cancer in Canada. CYP-C collects information on children and youth with cancer including treatments, complications, and outcomes. For this population, CYP-C aims to help us to better understand risk factors, improve outcomes, enhance the quality and accessibility of care, and reduce late effects. CYP-C is fully funded and managed by the Public Health Agency of Canada in partnership with the C17 Council, the network of all the seventeen children’s cancer hospitals across the country.
What information do we collect?
The CYP-C program collects health and treatment information on each child/youth under the age of fifteen diagnosed with cancer in Canada. Data are collected from all the children's cancer hospitals in Canada. Designated staff at these hospitals send information without individuals' names by private, secured data channels to a national, electronic database where this information is stored for ongoing research and monitoring.
| Demographics | Diagnostic Details | Time to Treatment | Treatment | Other |
|---|---|---|---|---|
| Sex | Date of diagnosis Diagnosis |
First health care professional contacted |
Treatment plan and start date |
Organ transplant (type and date) |
| Date of birth | ICDO-M, ICDO-T and ICCC codes |
Date first health care professional contacted |
Treatment completion details |
Complications |
| Age at diagnosis | Stage at diagnosis Risk |
Dates first seen by: oncologist, surgeon, and/or specialist |
Chemotherapy and dose (agent(s) and dose) |
Hospitalizations |
| Province Postal code |
Grade Chromosomal testing Metastases and site(s) |
|
Surgery details | Relapse |
| Ethnicity | Predisposing and genetic conditions |
|
Radiation (intent, type, site) | Vital status |
|
|
|
Hematopoietic stem cell transplantation | Height and weight |
How will the information we collect improve the lives of children and youth diagnosed with cancer?
Each year approximately 880 children and youth under the age of fifteen are diagnosed with cancer in Canada, and 150 die from their disease. CYP-C has been designed to provide information needed for supporting the reduction of the burden of cancer among children and youth, reducing complications and long-term health problems associated with cancer treatment, and improving treatment and care.
Next steps
CYP-C will be expanded in the future to include adolescents between the ages of 15 and 19.
Fact Sheets
Who do I contact to obtain more information about the program?
Please contact us by email at cypc-ccjc@phac-aspc.gc.ca.
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